On Wednesday, March 2, 2011 a few hundred advocates will be personally meeting with Senators and Members of House of Representatives to ask that they join the Congressional Caucus on Parkinson's disease, to Co-sponsor the National Neurological Diseases Surveilance System Act and to support biomedical research as well as therapy development at the National Institutes of Health.
All it takes is a simple statement to your Congressman/woman begins with a single phone call or email in support of the passage of the revised National MS and Parkinnson's Disease Registries Act (HR 1362 and S 1273) now known as the National Neurological Diseases Surveillance System Act of 2011-2012 S.425. It will be introduced by Co-sponsor Senator Mark Udall, son of the late Morris Udall. As a matter of fact, PAN has already written the statement which you can edit to personalize or send as is.
|USA coast to coast|
Please remember to thank your legislator if you see your State represented.
Update: As you know, the National Neurological Diseases Surveilance System Act of 2011-2012 S.425.IS was introduced by Senator Udall. That does not mean it is a done deal. Continued public support is necessary. Follow the bill so that you can send the necessary reminders to your government officials.
"The bill will create, for the first time, separate, permanent, and coordinated MS and Parkinson's disease national registries at the Centers for Disease Control and Prevention (CDC). The registries will rely upon existing databases including Medicare, Veterans Affairs, state registries, and other databases to determine the incidence and prevalence of MS and Parkinson's disease across America."