Just before Halloween members of Patients Like Me received a letter from the PARS Study Group at the Institute for Neurodegenerative Disorders in New Haven, CT, In collaboration with the University of Pennsylvania in Philadelphia, PA and PatientsLikeMe, they are testing strategies to screen individuals for early signs of Parkinson's disease. The study group is called PARS (Parkinson's Associated Risk Study).
We hope you will take a look and pass this information and act on it by applying and/or passing it along. It might turn out to be significant to your children or grandchildren, your younger siblings and neices and nephews. It might just help a total stranger now linked to your efforts by that 6 degrees...
We have excerpted the email below:
Do you have any friends or family members who have always wanted to participate in a research study? Our partners at the Institute for Neurodegenerative Disorders and University of Pennsylvania are conducting a very exciting study just for them. Be sure to pass it on!
A Message from our Partners
We are writing to inform you of a groundbreaking study to test a strategy to screen individuals for early signs of Parkinson disease. We are seeking your help in identifying individuals who may be eligible to participate in the study..
We are currently looking for individuals with a first-degree relative diagnosed with Parkinson disease as well as individuals that have no relatives with Parkinson disease to participate. If you have first-degree relatives (sister, brother, mother, father, or children) or friends without a family history of Parkinson disease who may be interested please encourage them to participate!
In order for your relatives or friends to be eligible, they must:
* Not carry a diagnosis of Parkinson disease or Alzheimer disease
* Be at least 60 years old
* Have no known reason for abnormal sense of smell (eg. Nasal trauma or sinus surgery).
We hope that you will pass along information about this study to your family members and friends!
Thanks for taking the time to consider and making the effort to help.