Over five years ago I was diagnosed with PD. In the beginning it didn't change my life very much. I could still work around the house a bit, still drove everyday, rode my bike through the park, and most importantly I still had a full time job. My appearance did not change right away and I was getting medication and alternative treatment but not the standard levadopa PD meds.
Life was fairly good even though there were some dark clouds building up. On bad days I worried. On good days I could see us living like this for years without much change. Now I know that was kinda foolish but who knows what the correct moves are when you are dealing with a chronic incurable disease. I've always thought that you usually just get one shot at it but it now seems that you get a chance every day if you mentally touch the worry beads.
Its very important to keep a positive attitude even when the whole world is going crazy. I've found I can't do it very well. Too much news about swine flu, bank failures, foreclosures, unemployment, health care disputes, plane crashes and new wars keeps me anxious and worried. Too many new symptoms or simple changes to my body scare me and make it harder to fight back against the disease. Too much knowledge makes me worry about everything. I focus on things that don't bring a laugh or a smile. Am I afraid to smile? Afraid that will bring bad luck?
Yes I stress too much about things I can't change and I spend too much time on the Internet discovering new worries. I'd love to be working again and contributing what I know about construction or the supermarket business; but that doesn't look promising. Worrying kept me busy. I know that I am sublimating my concerns about the rest of my life by worrying about everything else but it's difficult to stop.
i care for my dad so am around him a great deal and find that talking candidly about side affects with some one close can be great for taking away worry and because i take a deep interest in it can give soom good input
ReplyDeleteWe all could take a lesson from what Anonymous wrote - being able to talk about side effects, worries and fears can be very important. Not just for the person with PD but also the caregiver.
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