Friday, June 24, 2011

Parkinson's Disease Clinical Trial Finder Customized for You

You can now register for the Fox Trial Finder for PD Clinical Trials
Follow the link at the bottom of this post

As you have probably surmised, we are believers in clinical trials. For some they are a way to contribute to the body of knowledge, for others they are a way to gain early access to potential treatments which might work for them. Early access generally means that the treatment will be available at no cost until it is marketed.

The Michael J Fox Foundation has created a new way to find a Parkinson's disease clinical trial suited for your personal needs in a location close to your residence. You have the option to select the distance from your home and to change it later if you cannot find trials within the initial range.

Although the Fox Trial Finder won't be up and running for a couple of weeks, it is not too soon to register to receive notification. We've already registered; you can too.

Entering your information into the Trial Finder itself can take a few minutes. You complete by checking the boxes on the form, save the info and move on to the questions on the next page. By doing this you can make sure that you are not wasting your time later or getting your hopes up for a trial which is too far away or for which you cannot participate. You can always reset the distance from your home or make other adjustments in the search parameters as there are changes in your life or lifestyle.

For those of us who have used Clinical, the initial input - the search parameters - are brief but you still have to do considerable reading to find a trial that is specific to your needs. Although you will still have to review the exclusionary info, you will have a personally directed search.

We've been fortunate enough to be able to preview the Fox Trial Finder and think it will benefit those in search of trials because of their specific PD issues. We'll post a direct link in July when it is up and running.
July 14, 2011
Check out the new Fox Trial Finder: Click here for a direct link to the Fox Trial Finder
According to MJFF: With Fox Trial Finder, you can create a profile including basic information about yourself (such as location and experience with PD) to identify your potential clinical trial matches. Registered users have the ability to review trial matches, bookmark interest in trials, and send messages directly – and anonymously – to trial coordinators registered on Fox Trial Finder.

Don't forget to adjust the mileage bar in the left column to the farthest distance you are willing to travel for a trial - if you don't, you'll receive results from the next state or more.
You can also see the subjects of the trials in the left margin and can simply select a topic.

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