MDS-UPDRS Table
Part I Non-Motor Aspects of Daily Living | Part II Motor Experiences of Daily Living | Part III Motor Examination Entire Body | Part IV Motor Complications: Dyskinesias and Fluctuations |
| Cognitive impairment | Speech | Speech | Time spent with dyskinesias (involuntray movement) |
| Hallucinations and psychosis | Saliva and Swallowing | Facial expression | functional impact of dyskinesias |
| Depressed mood | Eating tasks | Rigidity | painful off-state dystonia (levadopa decrement) |
| Anxious Mood | Dressing | Hand Movements | Motor fluctuations in off-state |
| Apathy | Hygiene | Rapid alternating movements of hands (pronation-supination) | Functional impact of motor fluctuations |
| Features of dopamine dysregulation | Handwriting | Toe tapping | Complexity of motor fluctuations |
| Sleep problems | Performing hobbies and other activities | leg agility | - |
| Daytime sleepiness | Turning in bed | Rising from a chair | - |
| Pain & other sensations | Tremor impact on activities | Gait | - |
| Urinary problems | Getting in and out of bed | Freezing of gait | - |
| Constipation problems | Walking and balancing | Posture | - |
| Lightheadedness on standing | Freezing | Global spontaniety of movement (body bradykinesia) | - |
| Fatigue | - | Postural hand tremor | - |
| - | - | Kinetic hand tremor | - |
| - | - | Rest tremor amplitude | - |
| - | - | Constancy of rest tremor | - |
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PARKINSON'S NEWS FLASH and ANNOUNCEMENTS
2013
While I've been answering email queries, I have not been posting recently. There is news that I am still processing emotionally but the gist is that there appear to be 2 essential forms of Parkinson's disease.
One form is the motor symptom aspect with which we are all familiar. Symptoms respond to treatment and while the disease continues to progress, quality of life can be clearly improved through treatment: medication; supplements; exercise, massage and speech therapies.
The other form of PD is non-motor symptom predominant and here all bets are off. At this point it is felt that early treatment with sinemet may be much more important than previously understood.
Little can be done for some of the symptoms which makes this form far more insidious because early distinctions need to be made for aggressive treatment in an attempt to save cognitive functions.
More will appear on this blog about non-motor symptom predominant Parkinson's disease but until it does it is important for People with a PD diagnosis to be very proactive with their medical support staff. Caregivers need to be better prepared as well.
I want to also let people know that emails are still being answered promptly as they are a much safer way for us to communicate than posting your phone number or email address in a comment section.
2012
We will be seeing the Neupro Rotigotine Transdermal Patch in US Pharmacies before the end of the year - no longer waiting on the FDA . UCB indicates a release time as July 2012
October 2011 - A new diagnostic tool has been created by the National Parkinson Foundation. This tool is designed for clinicians but that doesn't mean that your medical team will be aware of this resource which can be accessed online, through an iPhone application, or an Android application. The iPhone app screen shot allows you to link to Planning, to common PD symptoms, Diagnostic considerations and to Treatment considerations.
July 27, 2011 - Just a few hours ago it was ruled that Federal Funding for hEsc is not prohibited by federal law and can continue.
View the Webcast from the Midwest and Young Onset Parkinsons Conference on June 18, 2011
Want to catch up on past seminars - Expert Briefings - offered by the Parkinson's Disease Foundation? Click Here
May 2011 - Patients Like Me has posted a wonderful way to make the most of appointment time with your doctor. You can take a look at the Doctor Visit Sheet at the PLM website.
Parkinson's Disease Foundation sponsored two online seminars. Register for Understanding Pain in Parkinson's Tuesday May 24, 2011 at 1:00-2:00 pm EDT.
Complementary Approaches to Parkinson's is scheduled for June 28th. Both seminars are archived at PDF
APRIL is Parkinson's Disease Awareness Month
Tuesday March 22, 2011 1:00-2:00pm ET PD Expert Briefing: Cognition and PD: What You've Always Wanted to Know But Were Too Afraid to Ask
I don't know if it is official but there is a grassroots organization calling awareness to Multiple Systems Atrophy - formerly Shy-Drager syndrome - March is MSA Awareness month which is appropriate because April is Parkinson's disease awareness month.
Just so you know: The National MS and Parkinson's disease registries Act (HR 1362/S 1273 was expanded to bcome the National Neurological Diseases Surveillance System Act - It will need our support.
Just click the link to be connected to the PDF archived PD Expert Briefing on "Physical Therapy and Parkinson's: What You Need to Know" Although we have been talking about many of the topics, we learned some new tricks.
October 22, 2010 FDA has recalled the Fentanyl Transdermal Patch used by some advanced stage PD patients for pain. Some patches have been found to release the active ingredient faster than approved specs. The result can be excessive sedation, depressed respiration, hypoventilation and apnea. Patients on both entacapone (Stalevo) and Fentanyl are already at risk for prolonged CNS and respiratory depression. If you have a family member in nursing care, their facility should be notified of this increased risk potential.
October 1, 2010 From the Michael J Fox Foundation comes the announcement of the launch of the Parkinson's Progression Markers Initiative (PPMI) Study in with the goal of identifying PD biomarkers. Biomarkers may open the door to "disease-modifying therapies."
On November 9, 2010 Michael J Fox was featured in an episode of one of my favorite shows The Good Wife on CBS. After his Rescue Me appearances, we love that Mr Fox has grown as an actor. The new role must have been fun. Did you catch him in a reprisal of the role in February 2011. And here we are in 2013 with the Michael J Fox show Thursdays at 9:30/8:30c on NBC.
May is ALS month
January 29, 2010 Margot Zobel, founder of The Parkinson's Unity Walk passed away. You can read more at the Parkinson's Action Network website: and from The Parkinson's Unity Walk
December 14, 2009 The FDA has approved the results of the phase IV clinical trials for Azilect resulting in permission to remove the food (Tyramine) restrictions (except for doses above 150 mgs) for this MAO-B inhibitor, as well as concerns regarding combination therapy with certain medications as well as OTC cough/cold medictions. Read more at Teva Pharmaceutical Industries Ltd
PDF held an online Expert Briefing "What's in the Parkinson's Pipeline?" Led by Dr David G Standaert the briefing April 20, 2010 This excellent briefing is now online in the PDF archives.....
On September 28-October 1, 2010 the Global Quilt of the PDF Quilt Project was displayed in Glasgow, Scotland UK at the 2nd World Parkinsons Congress. It represents the work of people from 14 countries contributing 2'x2' panels using photos, illustrations and other mementos to tell the stories of PD. You can see images of the quilt as displayed at PDF. 9/23/09 Results of the ADAGIO study for Azilect (rasagiline) 1 mg appears to be effective for a disease modifying effect. For MJFF commentary by Karl Kieburtz, MD, MPH
9/07/09 Only a few more days before James Bowthorpe completes his round the world cycle for PD. He began in London. You can read about his journey by double clicking here
6/11/09 The World Health Organization declared the H1N1 Virus to be a global pandemic. Of note: This flu most common among young healthy adults unlike the seasonal flu. This could change as the virus continues to evolve. For US maps, visit the CDC website For WHO information click here
5/6/09 The European Medicines Agency (EMEA) recommended removing restrictions on the Neupro Transdermal Patch for PD and RLS in all remaining European countries. Check for update posts about the USA status within the blog - we add them every few months. There is a Named Patient Clinical Trial in 2011.
3/12/09 Don't miss your chance as a diagnosed PD patient to enroll in the genetic testing program offered by 23andMe,Inc as sponsored by the Michael J Fox Foundation, Parkinson's Institute and Sergey Brin of Google. Links are in the article and also listed under Clinical Trials (altho this is not a clinical trial it is an opportunity to contribute to research.
3/09/09 President Obama signed an exective order to lift the Bush ban on federal support for embroyic stem cell research on Monday, March 9th, 2009. And now in 2010 we are waiting to see if the anti-injunction will be permanently lifted.
While I've been answering email queries, I have not been posting recently. There is news that I am still processing emotionally but the gist is that there appear to be 2 essential forms of Parkinson's disease.
One form is the motor symptom aspect with which we are all familiar. Symptoms respond to treatment and while the disease continues to progress, quality of life can be clearly improved through treatment: medication; supplements; exercise, massage and speech therapies.
The other form of PD is non-motor symptom predominant and here all bets are off. At this point it is felt that early treatment with sinemet may be much more important than previously understood.
Little can be done for some of the symptoms which makes this form far more insidious because early distinctions need to be made for aggressive treatment in an attempt to save cognitive functions.
More will appear on this blog about non-motor symptom predominant Parkinson's disease but until it does it is important for People with a PD diagnosis to be very proactive with their medical support staff. Caregivers need to be better prepared as well.
I want to also let people know that emails are still being answered promptly as they are a much safer way for us to communicate than posting your phone number or email address in a comment section.
2012
We will be seeing the Neupro Rotigotine Transdermal Patch in US Pharmacies before the end of the year - no longer waiting on the FDA . UCB indicates a release time as July 2012
October 2011 - A new diagnostic tool has been created by the National Parkinson Foundation. This tool is designed for clinicians but that doesn't mean that your medical team will be aware of this resource which can be accessed online, through an iPhone application, or an Android application. The iPhone app screen shot allows you to link to Planning, to common PD symptoms, Diagnostic considerations and to Treatment considerations.
July 27, 2011 - Just a few hours ago it was ruled that Federal Funding for hEsc is not prohibited by federal law and can continue.
View the Webcast from the Midwest and Young Onset Parkinsons Conference on June 18, 2011
Want to catch up on past seminars - Expert Briefings - offered by the Parkinson's Disease Foundation? Click Here
May 2011 - Patients Like Me has posted a wonderful way to make the most of appointment time with your doctor. You can take a look at the Doctor Visit Sheet at the PLM website.
Parkinson's Disease Foundation sponsored two online seminars. Register for Understanding Pain in Parkinson's Tuesday May 24, 2011 at 1:00-2:00 pm EDT.
Complementary Approaches to Parkinson's is scheduled for June 28th. Both seminars are archived at PDF
APRIL is Parkinson's Disease Awareness Month
Tuesday March 22, 2011 1:00-2:00pm ET PD Expert Briefing: Cognition and PD: What You've Always Wanted to Know But Were Too Afraid to Ask
I don't know if it is official but there is a grassroots organization calling awareness to Multiple Systems Atrophy - formerly Shy-Drager syndrome - March is MSA Awareness month which is appropriate because April is Parkinson's disease awareness month.
Just so you know: The National MS and Parkinson's disease registries Act (HR 1362/S 1273 was expanded to bcome the National Neurological Diseases Surveillance System Act - It will need our support.
Just click the link to be connected to the PDF archived PD Expert Briefing on "Physical Therapy and Parkinson's: What You Need to Know" Although we have been talking about many of the topics, we learned some new tricks.
October 22, 2010 FDA has recalled the Fentanyl Transdermal Patch used by some advanced stage PD patients for pain. Some patches have been found to release the active ingredient faster than approved specs. The result can be excessive sedation, depressed respiration, hypoventilation and apnea. Patients on both entacapone (Stalevo) and Fentanyl are already at risk for prolonged CNS and respiratory depression. If you have a family member in nursing care, their facility should be notified of this increased risk potential.
October 1, 2010 From the Michael J Fox Foundation comes the announcement of the launch of the Parkinson's Progression Markers Initiative (PPMI) Study in with the goal of identifying PD biomarkers. Biomarkers may open the door to "disease-modifying therapies."
On November 9, 2010 Michael J Fox was featured in an episode of one of my favorite shows The Good Wife on CBS. After his Rescue Me appearances, we love that Mr Fox has grown as an actor. The new role must have been fun. Did you catch him in a reprisal of the role in February 2011. And here we are in 2013 with the Michael J Fox show Thursdays at 9:30/8:30c on NBC.
May is ALS month
January 29, 2010 Margot Zobel, founder of The Parkinson's Unity Walk passed away. You can read more at the Parkinson's Action Network website: and from The Parkinson's Unity Walk
December 14, 2009 The FDA has approved the results of the phase IV clinical trials for Azilect resulting in permission to remove the food (Tyramine) restrictions (except for doses above 150 mgs) for this MAO-B inhibitor, as well as concerns regarding combination therapy with certain medications as well as OTC cough/cold medictions. Read more at Teva Pharmaceutical Industries Ltd
PDF held an online Expert Briefing "What's in the Parkinson's Pipeline?" Led by Dr David G Standaert the briefing April 20, 2010 This excellent briefing is now online in the PDF archives.....
On September 28-October 1, 2010 the Global Quilt of the PDF Quilt Project was displayed in Glasgow, Scotland UK at the 2nd World Parkinsons Congress. It represents the work of people from 14 countries contributing 2'x2' panels using photos, illustrations and other mementos to tell the stories of PD. You can see images of the quilt as displayed at PDF. 9/23/09 Results of the ADAGIO study for Azilect (rasagiline) 1 mg appears to be effective for a disease modifying effect. For MJFF commentary by Karl Kieburtz, MD, MPH
9/07/09 Only a few more days before James Bowthorpe completes his round the world cycle for PD. He began in London. You can read about his journey by double clicking here
6/11/09 The World Health Organization declared the H1N1 Virus to be a global pandemic. Of note: This flu most common among young healthy adults unlike the seasonal flu. This could change as the virus continues to evolve. For US maps, visit the CDC website For WHO information click here
5/6/09 The European Medicines Agency (EMEA) recommended removing restrictions on the Neupro Transdermal Patch for PD and RLS in all remaining European countries. Check for update posts about the USA status within the blog - we add them every few months. There is a Named Patient Clinical Trial in 2011.
3/12/09 Don't miss your chance as a diagnosed PD patient to enroll in the genetic testing program offered by 23andMe,Inc as sponsored by the Michael J Fox Foundation, Parkinson's Institute and Sergey Brin of Google. Links are in the article and also listed under Clinical Trials (altho this is not a clinical trial it is an opportunity to contribute to research.
3/09/09 President Obama signed an exective order to lift the Bush ban on federal support for embroyic stem cell research on Monday, March 9th, 2009. And now in 2010 we are waiting to see if the anti-injunction will be permanently lifted.
ABOUT PARKINSON'S DISEASE
- About Parkinson's Disease 3/06/09
- About PD - Questions part 2 3/09/09
- Be Proactive for best care 9-06-08
- Concerns & Prep:Changing Drs. 1/28/09
- Coping with PD 6/04/09
- Cure or Treatment? Lentivector(R) Trials 1/24/09
- Day with PD 8/20/09
- Dehydration & PD 1/04/10
- Diagnosis inretrospect 12/31/08
- Differential Diagnosis - PD or something else? 3/29/10
- External Toxins - DDT and Grandpa's Farm 9/26/08
- Genetics & Parkinson's PINK1 mutation 3/16/09
- Hoen-Yahr, Schwab & England, links to MDS-UPDRS scales 3/11/09
- I worry about everything 9/09/09
- Importance of Good Breathing Habits 2/02/09
- Link to video: My Father, My Brother, and Me 6/20/09
- Loss of Sense of Smell 3/21/09
- MDS-UPDRS Table 3/11/09
- Meeting Others with PD 5/16/09
- Osteoarthritis in knees and Parkinson's 2/06/09
- Pain and PD 6/06/09
- PD, a Line of Duty Disability in Indiana 5/09/09
- Pesticide triggers of PD in Vietnam Veterans 5/11/09
- Sex and the PD patient 8/14/08
- Share your condition with your family 8/11/09
- Sometimes there are other physical issues 11/12/09
- Strengthening the PD Immune System 4/30/09
- Weight loss-eating issues with PD part 2 6/13/09
- What is Parkinson's? 2/14/10
- When I Got the Parkinson's Diagnosis 7/08/08
- Why I Went for a Diagnosis 8/22/08
- Work, Parkinson's and Medications 8/27/08
- You've been diagnosed - now what? Being Proactive 11/06/08
AQUA THERAPY - SWIM THERAPY - WATER THERAPY
Breathing Exercises
CLINICAL TRIALS and STUDIES for Parkinson's Disease - Index
- A Clinical Trial GLOSSARY
- About Clinical Trials: What you should know and do
- All currently recruiting Transcranial Magnetic Stimulation PD trials
- Boston University PD & Movement Disorders-All Studies-Clinical Trials
- Clinical Trials by Category - all inclusive
- Clinical Trials by International Area
- Clinical Trials listing from Center Watch
- Clinical Trials Worldwide
- Cogane - Phase II - NOW ENROLLING
- Coping with Depression in PD
- CoQ10 & PD Clinical Trials-Cleveland Clinic-not yet recruiting
- CoQ10 PD Research Study-Boston U
- CoQ10 Trials-Rochester, NY
- Creatine Clinical Trial through NIH
- Deep Brain Stimulation (DBS) Clinical Trials
- Droxidopa for Neurogenic Orthostatic Hypotension
- DynaCircCR (Isradipine) Clinical Trial Information
- Genetic Testing Opportunity with 23andMe; MJFF; PI & Sergey Brin, Google
- Intermittent Theta Burst Transcranial Brain Stimulation - Protocol # 08-N-0212 email & info
- Laser Light Cane vs U-Step Walker with Laser Accessory- Completed
- Memory Disorders Registry-Clinical Trial NCT00654563 Cedars-Sinai Medical Center, CA - recruiting Alzheimer's,Vascular Dementia, Dementia with Lewy Bodies, Parkinson's & Huntington's disease
- Michael J Fox Clinical Trial Finder Pre-registration 6/24/11
- Movement Disorder Trials at Northwestern U
- Neupro Update-Named Patient Trial 1/31/2011
- Northeast Ohio: Cleveland Clinic Center for Neurological Restoration
- Northwestern University: Clinical Trials
- Parkinson's Study Group
- PD Trials
- Rotigotine Transdermal Patch: Phase III trials for advanced PD-recruiting
- Transcranial Magnetic Stimulation to Treat PD-currently recruiting
- University of Maryland
- Webinar for people considering entering a clinical trial
DEPRESSION & PD - Index
DRUGS-MEDICATION-MEDS TO TALK ABOUT for PD - Index
- About CoQ10 1/31/09
- About Online Pharmacies - risks and due diligence 3/14/10
- Amlodipine Doesn't Cross blood brain barrier 9/16/08
- Antifreeze chemicals in PD meds 5/08/10
- Azilect - to slow PD progression 7/07/08
- Co-Drugs for PD 9/01/09
- Discontinuing medication-Titrate down safely 1/25/10
- Dynacirc Back on the Market 11/14/08
- Dynacirc CR compared to Nefidiac, a CCB 10/10/08
- DynaCirc-The change It made for me 9/06/08
- Isradipine and PD 2/17/09
- Isradipine or Dynacirc CR 2/09/09
- Isradipine Phase II Trials 2/12/09
- Low Dose Naltrexone -LDN Side Effects 6/08/09
- Medications I took so I could continue working 8/27/08
- Meds and PD depression 3/13/09
- Neupro Rotigotine Patch USA Update-5/07/09
- Return to more $$$ DynaCircCR 2/19/09
- Shortage of Sinemet CR 1/28/10
- Switching from DynaCircCR to generic Isradipine 1-28-09
EXERCISES for PARKINSON'S DISEASE - Index
- Arm Swing - Marching in Place - Chair Exercises 2/26/09
- Asthma Originated Breathing Therapy-Butekyo Method 7-08-08
- Basic Exercises for PD and Other Neuromotor Diseases 8/23/08
- Chair Exercises for PD stiffness, walking, low impact 2/20/09
- Dance Therapy for PD 1/29/09
- Exercise equipment at the therapy center 7/19/09
- Explanation of Butyeko technique for breathing 2/11/09
- Forced Exercise and PD 5/10/09
- Intro to Breathing Exercises 2/02/09
- Postural Instability exercises 2/17/12
- Strengthen Shoulders for walking balance 2/27/09
- Tango - Dancing when you can hardly walk 8/16/08
- Top Ten Exercises for Daily PD Navigation 10/30/08
- Yoga breathing for constipation 2/04/09
- Yoga Exercises for Breathing-Butekyo Method 2/04/09
- Yoga for PD Depression 2/08/09
GENETICS and PD - Index
LIFE STYLE AIDS and ASSISTIVE DEVICES for Parkinson's - Index
MASSAGE THERAPY Index
NUTRITION and DIET for PD - Index -
- Dehydration and PD 1/04/10
- Gluten free: 3 month update 11/04/09
- Gluten-Free: 2 months 9/27/09
- Black Tea, Green Tea & PD 8/05/09
- Gluten-Free with PD - part 2 7/27/09
- Gluten Free Me with PD 7/24/09
- What's in those fruits & veggies for PD 6/28/09
- PD medication side effects-unwanted weight loss 6/13/09
- Tropical Fruits & the Warnings 6/24/09
RESEARCH for PARKINSON'S DISEASE - Index
- An Opportunity to Participate: 23andMe & MJFF 3/12/09
- Caffeine-Coffee Receptors - Will it delay onset of PD? 11/03/08
- CD4+ T cells - another research for new therapy
- Cogane: elevating the levels of GDNF 5/12/09
- Gene Therapy Clinical Trials 1/24/08
- Getting Rid of Cellular Waste-Lysosome Receptors 8/12/08
- Glial Cell Derived Neurotropic Factor-GDNF 10/21/08
- Global Financial Crisis impact$ research 10/14/08
- New PD Research for Calcium Channel Antagonist at Northwestern University 2/12/09
- Optogenics - the blue light special 3/26/09
- Parkinson's and Pesticide Exposure Studies 1/26/09
- Spinal Cord Stimulation - alternative to DBS 3/20/09
- Spinal Cord Stimulation-PD treatment of the future? 3/30/09
- The Future of Isradipine and PD 2/17/09
- The PD Triangle-Cause of Dopamine Cell Death 5/03/09
- Urate and Inosine - a potential therapy for PD? 1/20/10
SEX, SEXUALITY, SENSUALITY, IMAGE and ISSUES - Index
SLEEP DISORDER INDEX
STEM CELL RESEARCH - Index
- ESC research threatened 6/03/09
- Executive Order -To Be Continued, Robert Gibbs, White House Press Sec'y 2/24/09
- Executive Order Signed 3/09/09 Lifts research ban
- FDA Approves Geron Corp Stem Cell Clinical Trials
- General info about stem cells-legislation 3/18/09
- In the Best Interest of a PD Cure - 5-19-09
- Input for improving NIH ESCR funding guidelines 5/02/09
- Lifting of Stem Cell Research Ban Expected 2/15/09
- Links to Fed stem cell research guidelines 5/14/09
- NIH guidelines: stem cell research funding 4/17/09
- No Executive Order lifting Ban 2/22/09
- President Obama's Difficult Decision 1/21/09
- Reprogrammed skin cells - 3/19/09
- Stem Cell Research Should Be a Priority 11/10/08
- Stem Cells from Male Testes 1/13/08
- Uncured Diseases Need More Political Victories 11/05/08
- Why Did NIH Stop Funding the National Stem Cell Bank? 4/12/10
SUPPLEMENTS - ALTERNATIVE THERAPY for PARKINSON'S DISEASE - Index
- About CoQ10 1/31/09
- CoQ10 - Ubiquione for Parkinson's, Cancer, Diabetes, Muscular Dystrophies, Heart Conditions, HIV/AIDS 7/08/08
- CoQ10 and Creatine for PD 9/01/09
- Creatine and Parkinson's 8/25/09
- Massage Therapy for PD Symptoms 7/16/09
- Osteoarthritis-Surgery not a good option-Yoga might be better
- Permanent Acupuncture to reduce reliance on meds
- Possible therapies for PD depression 3/13/09
- Sexual and Urinary issues in PD 7/13/09
- Shopping for the best price for CoQ10 7/29/09
- Turmeric and Curcumin-Strong Antioxidants
- Yoga for PD and PD Depression 2/09/09
SWALLOWING PROBLEMS and VOICE EXERCISES for PD
SYMPTOMS of PARKINSON'S
- Arthritis and PD symptoms 4/15/09
- Confusing dehydration with PD progression 6/09/10
- Constipation - what to try 9/15/09
- Depression and SAD, Seasonal Affective Disorder 3/19/09
- Early PD Symptoms in Women 5/06/09
- PD diagnostics: UPDRS, Hohen-Yahr, Schwab&England 3/11/09
- PD Stiffness and Arthritis 5/15/09
- Postural Instability and Gait Disturbance in PD 1/29/12
- Preventing Falls - Postural Instability 4/22/10
- Review of Steve's Symptoms 1/09/09
- Seborrhea, seborrheic dermatis, dandruff 4/24/09
- Stooped posture-Look Ahead-Get a Massage 10/01/09
- Swallowing, choking, speaking, breathing 7/06/09
- They say hearing loss is not a PD symptom 3/05/09
- Vision Problems in PD - Associated Content article
- Weight loss and associated problems 6/11/09
TREATMENTS for PD - Index
- August 2009 Neupro Patch Update - 8-16-09
- Bad news: Neupro and FDA ruling 4/29/10
- Blue Glasses and Overlays for PD L-dopa induced Dystonia/Dyskinesia 11/22/09
- Calcium Channel Blockers for PD 4/07/10
- Cogane - phase 1b complete -Phase II scheduled 10/14/09
- December 2009 pipeline treatment updates 12/23/09
- Deep Brain Stimulation 3/25/09
- Forced Exercise & PD 5/10/09
- LDN Naltrexone, another possible symptom treatment 6/01/09
- LDN-low dose Naltrexone-dosage updates 6/19/09
- Medical Marijuana for PD 5/27/09
- Neupro Patch Update for Thanksgiving 11/26/09
- Neupro, rotigotine transdermal patch 4/10/09
- Neupro-Rotigotine patch update 1-31-11
- Permanent Acupuncture for PD
- Thinking about Cogane 11/08/09
- Transcranial Magnetic Stimulation 4/07/09
- Treatments for Parkinson's disease 12/11/09
- Vision Problems & Treatments
THE WORLD and PARKINSON'S DISEASE - Index
- 15th Annual PD Unity Walk 4/25/09
- Brief History of Cannabis References Shaking Palsy 5/29/09
- Bush Ban on Embryonic Stem Cell Research may end 2/15/09
- CWRU Survey:Genome Scan Users-links 5/23/09
- False Hope Can Cost Research $$$$ 10/21/08
- FDA Approves Geron Corp Clinical Trials 1/23/09
- Links to Parkinson's Associated Risk Factors Study application (PARS) 11/15/09
- MJF candidate victory in New England 11/05/08
- National Registry bills for MS and PD 2/21/10
- Neupro Rotigotine Patch & Transcranial Magnetic Stimulation Trial Updates 5/09/09
- News Updates 10/19/2009
- No Exec Order to Lift Stem Cell Ban Yet 2/22/09
- Nursing home changes 4/08/09
- Obama's Hard Decision - Stem Cell Research 1/21/09
- Official recognition of PD thru HR 1428 5/11/09
- PD Walks & Events for Spring 2010 2/05/10
- President lifts embryonic stem cell research Fed funding ban 3/09/09
- ProSavin Update 5/22/2009
- Robert Gibbs and Chuck Todd - Not Amusing 2/24/09
- Swine Flu and PD 4/30/09
- Swine Flu-H1N1 Influenza A-links-updates 5/01/09
- Well Water & high PD rate among the Amish 8/13/09
About Parkinson's Disease
BEWARE the GLUTAMATE
CoQ10, Vitamin B and essential tremor
It has been established that Vitamin B2 (Riboflavin) and high doses of Vitamin B12 can work with CoQ10 to ease tremors.
You can take Vitamin B complex and CoQ10 together at the beginning of the day when you take your first CoQ10.
Do not overdo the B complex vitamins; to avoid forcing your kidneys to overwork eliminating the excess and high doses are contraindicated for some cardiac patients.
Remember that if you are taking levadopa, you may need to time your B6 (pyridoxine) or B complex vitamins carefully. You can still take them separately...especially B2 (riboflavin), B3 (niacin), B9 (folic acid), B12 (cobalamin).
Whether on levodopa or not, the complex can be beneficial to sleeping. A good B complex is also the most economical way to go. The B's are probably most effective when taken a liquid or by injection rather than in tablet form. Capsules are usually better than tablets because they can be easier to swallow and have fewer excipients. There are also effective sublinguals.
You can take Vitamin B complex and CoQ10 together at the beginning of the day when you take your first CoQ10.
Do not overdo the B complex vitamins; to avoid forcing your kidneys to overwork eliminating the excess and high doses are contraindicated for some cardiac patients.
Remember that if you are taking levadopa, you may need to time your B6 (pyridoxine) or B complex vitamins carefully. You can still take them separately...especially B2 (riboflavin), B3 (niacin), B9 (folic acid), B12 (cobalamin).
Whether on levodopa or not, the complex can be beneficial to sleeping. A good B complex is also the most economical way to go. The B's are probably most effective when taken a liquid or by injection rather than in tablet form. Capsules are usually better than tablets because they can be easier to swallow and have fewer excipients. There are also effective sublinguals.
PARKINSON'S FOCUS TODAY
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Posts
Clinical Trial FInder at MJFF and the Parkinson's Pipeline Project
Click here for a direct link to the Fox Trial Finder
For best results set the mileage bar in the left column.
Take a look at the Parkinson's Pipeline Project Scorecard to see the lineup of medications and therapies in R & D
For best results set the mileage bar in the left column.
Take a look at the Parkinson's Pipeline Project Scorecard to see the lineup of medications and therapies in R & D
EXERCISE REGULARLY to OFFSET PD SYMPTOMS and TO FEEL BETTER
Don't be afraid to try the exercises you find in the margin or articles. Check indices for specifics.
Begin with ones which you feel are possible. If you have space or flexibility issues, try another.
These exercises are for symptoms you might have now or develop.
For PD you need to repeat exercises regularly because the disease continues to work against improvements.
And what if they help you to breathe better? To sleep better, to swallow safely? To find ways to maintain your balance? To button your shirt?
What if...Those endorphins are waiting for release.
Begin with ones which you feel are possible. If you have space or flexibility issues, try another.
These exercises are for symptoms you might have now or develop.
For PD you need to repeat exercises regularly because the disease continues to work against improvements.
And what if they help you to breathe better? To sleep better, to swallow safely? To find ways to maintain your balance? To button your shirt?
What if...Those endorphins are waiting for release.
Exercising
on the Total Gym
Tennis ball Hand Exercises -Stretching
To relieve stiffness: Insert ball between fingers as far as you can. Repeat between each finger. Stretching NOT squeezing is the important element of this exercise. Your goal is to prevent muscle tightening.
Yawning As Exercise
A full open-mouth yawn will open your throat - tilt your head back, yawn and feel what happens
ooo O aah A eee
A good exercise for doing in the morning and at night or anytime to open the throat and exercise those swallowing and speaking muscles
Swallowing Problems ???
Try CHEWING GUM...
It's a good workout for the jaws and the throat to improve your ability to swallow. It can help dry mouth but not as much as hard candy or ice chips.
It's a good workout for the jaws and the throat to improve your ability to swallow. It can help dry mouth but not as much as hard candy or ice chips.
Posture and Gait as a symptom of PD
Lack of arm swing - foot drag - shoulder stoop - small stwps
TURN UP THE VOLUME
An exercise to add adding volume when speaking:
Place your hand on your diaphragm- the stomach area-when reading aloud-that way you can feel what is or is not occurring.
Feel the in-out movement as you breathe? This tells you that you are projecting your voice using your diaphragm, propelling the air from your lungs, rather than speaking from the "top" of your chest..
Little or no movement tells you that you are using your breath alone and not the muscles which propel that air from your lungs. You may not have to speak to the back of the hall, but you might need to speak across a room or even across the table. And don't you hate being asked to repeat yourself?
Place your hand on your diaphragm- the stomach area-when reading aloud-that way you can feel what is or is not occurring.
Feel the in-out movement as you breathe? This tells you that you are projecting your voice using your diaphragm, propelling the air from your lungs, rather than speaking from the "top" of your chest..
Little or no movement tells you that you are using your breath alone and not the muscles which propel that air from your lungs. You may not have to speak to the back of the hall, but you might need to speak across a room or even across the table. And don't you hate being asked to repeat yourself?
Reflections
There is always hope
Contributors
In Younger Days
Was the PD apparent then but we missed it?
Site-Links to Helpful Information
- Assistive Technology links form PD Association of San Diego
- Carol D O'dell
- Firefighters with Parkinson's.org
- Gluten Free Cooking School - sign up for newsletters about GF recipes, tips, inspiration
- Healthcare Technicians - Resources for a career search
- Mayo Clinic SYMPTOM Checker
- National Institute of Neurological Disorders and Stroke: Parkinson's
- Parkinson's Pipeline Project-Research status
- Research funding by the Michael J Fox Foundation
- Social Security Disability Questions? How to apply? How to appeal a denied claim? How to navigate the Federal system? How to avoid typical applicant mistakes? The answers might be at this site written by a former claims examiner
- Social Security program questions? You can find links to all of the programs in this Wikipedia article.
- Stem Cell Research-National Institutes of Health
- Voice Aerobics DVD
- Young Onset Parkinson's Association: The Pharmacists Forum-to answer med questions
FAVORITE BLOGS
- A Delightful take on the world by My Daughter, a keen observer and very amusing - Read it for your weekly dose of humor about everyday life
- A relocated Que Onda Q'town - we love it, of course - check the archives
- Aerobics for Voice and Swallowing-new blog byMary Spremull, MA, CCC-SLP Speech Therapy
- By the Time I Post This...Mostly about our pets, children and whatever
- Cleveland Photos - Pictures in & around Cuyaoga County, Ohio
- Day by Day with a Movement Disorder
- Here is Rick's blog: A Matter of Balance
- Ken has had DBS and writes about his experience
- Metamorphis of Btrflynana and MSA
- Parkinson's Insights - Perspectives from the Parkinson's Disease Foundation
- Parkinson's Journey
- Pokie's blog
- Pokie's newer blog: Parkinson's, Acute Arthritis and Epilepsy
- Sergey Brin blog "TOO"
- Try Weekly Journal for a frank point of view
- Yes, We Can Dance - PD from a different viewpoint
* * * * * * Smiles * * * * * *
Some people are working backstage, some are playing in the orchestra, some are on stage singing, some are in the audience as critics and some are there to applaud.
Know who, when and where you are.
It's not always going to be the same...Anon
"When we honestly ask ourselves which person in our lives means the most us, we often find that it is those who, instead of giving much advise, solutions, or cures, have chosen rather to share our pain and touch our wounds with a gentle and tender hand"
".....every time there are losses there are choices to be made. You choose to live your losses as passages to anger, blame, hatred, depression and resentment, or you choose to let these losses be passages to something new, something wider, and deeper" Henri Nouwen
"The human race has only one really effective weapon and that is laughter." Mark Twain
"Pessimist: One who, when he has the choice of two evils, chooses both." Oscar Wilde
"Be the change you want to see in the world." ..."God has no religion" Mahatma Gandhi
"Every artist was first an amateur." Ralph Waldo Emerson
"There is no reason anyone would want a computer in their home." -- Ken Olson, president, chairman and founder of Digital Equipment Corp.,1977
"64K ought to be enough memory for anybody." -- Bill Gates, 1981
"The longer we dwell on our misfortunes the greater is their power to harm us" Voltaire
"We don't stop playing because we grow old; we grow old because we stop playing." George Bernard Shaw
"Now, here, you see, it takes all the running you can do, to stay in the same place. If you want to get somewhere else, you must run at least twice as fast as that!"
" It's a poor sort of memory that only works backwards."
"She generally gave herself very good advice, (though she very seldom followed it)" Lewis Carroll
"If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or far away." Henry David Thoreau
"Experience is not what happens to you. It is what you do with what happens to you." Aldous Huxley
"The most wasted of all days is one without laughter." - E.E. Cummings
"Old age ain't no place for sissies." Bette Davis
"Nobody can make you feel inferior without your permission." Eleanor Roosevelt
"If a woman has to choose between catching a fly ball and saving an infant's life, she will choose to save the infant's life without even considering if there is a man on base." --Dave Barry
"Do not confuse motion and progress. A rocking horse keeps moving but does not make any progress." Albert A. Montapert
"When a doctor recommends you take a test or have some surgery, ask whether the doctor would suggest that his or her spouse or children go through such a procedure. Contrary to popular belief, doctors can't cure everyone. So why cause unnecessary pain with surgery? I think music and animal therapy can help more than most doctors imagine" Shigeaki Hinohara, 97 year old practicing physician at St Lukes International Hospital in Tokyo and teacher at St Luke's College of Nursing.
Know who, when and where you are.
It's not always going to be the same...Anon
"When we honestly ask ourselves which person in our lives means the most us, we often find that it is those who, instead of giving much advise, solutions, or cures, have chosen rather to share our pain and touch our wounds with a gentle and tender hand"
".....every time there are losses there are choices to be made. You choose to live your losses as passages to anger, blame, hatred, depression and resentment, or you choose to let these losses be passages to something new, something wider, and deeper" Henri Nouwen
"The human race has only one really effective weapon and that is laughter." Mark Twain
"Pessimist: One who, when he has the choice of two evils, chooses both." Oscar Wilde
"Be the change you want to see in the world." ..."God has no religion" Mahatma Gandhi
"Every artist was first an amateur." Ralph Waldo Emerson
"There is no reason anyone would want a computer in their home." -- Ken Olson, president, chairman and founder of Digital Equipment Corp.,1977
"64K ought to be enough memory for anybody." -- Bill Gates, 1981
"The longer we dwell on our misfortunes the greater is their power to harm us" Voltaire
"We don't stop playing because we grow old; we grow old because we stop playing." George Bernard Shaw
"Now, here, you see, it takes all the running you can do, to stay in the same place. If you want to get somewhere else, you must run at least twice as fast as that!"
" It's a poor sort of memory that only works backwards."
"She generally gave herself very good advice, (though she very seldom followed it)" Lewis Carroll
"If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or far away." Henry David Thoreau
"Experience is not what happens to you. It is what you do with what happens to you." Aldous Huxley
"The most wasted of all days is one without laughter." - E.E. Cummings
"Old age ain't no place for sissies." Bette Davis
"Nobody can make you feel inferior without your permission." Eleanor Roosevelt
"If a woman has to choose between catching a fly ball and saving an infant's life, she will choose to save the infant's life without even considering if there is a man on base." --Dave Barry
"Do not confuse motion and progress. A rocking horse keeps moving but does not make any progress." Albert A. Montapert
"When a doctor recommends you take a test or have some surgery, ask whether the doctor would suggest that his or her spouse or children go through such a procedure. Contrary to popular belief, doctors can't cure everyone. So why cause unnecessary pain with surgery? I think music and animal therapy can help more than most doctors imagine" Shigeaki Hinohara, 97 year old practicing physician at St Lukes International Hospital in Tokyo and teacher at St Luke's College of Nursing.
A Tulip In Recognition of Parkinson's Disease
OTHER ARTICLES ON PARKINSON'S AND NEUROMOTOR EXERCISES
Please note:
The information and/or reference materials contained herein are intended solely to provide background information. Although there may be medical information, this site specifically does not provide medical advice nor engage in the practice of medicine. Under no circumstance will we recommend a particular treatment for specific individuals. In all cases for medical advice about the conditions, symptoms, exercises, treatment, medications, supplements mentioned herein, a physician should always be consulted.
The purpose of this site is to provide information from the personal viewpoint of a Parkinson's disease patient and his caregiver.
Articles published here are the property of Parkinson's Focus Today
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(1)
swallowing exercise
(2)
swallowing problems
(2)
swim therapy
(1)
synucleinopathy
(1)
talk to your doctor
(1)
tandem bicycle
(1)
tango.dance
(1)
tea
(1)
theaflavins
(1)
therapy center
(1)
therubigins
(1)
throat rehabilitation
(1)
timed-release
(1)
titrating down
(1)
titration
(1)
topical fruit to avoid with PD
(1)
toxic exposure
(1)
trans-isomer process
(2)
transcranial magnetic stimulation
(2)
treatments for Parkinson's
(1)
tremor
(2)
tremors
(2)
turmeric
(2)
ubiquinone
(1)
unexplained weight loss
(1)
updates
(1)
urate levels in Parkinson's
(2)
urinary frequency
(7)
valerian
(1)
viagra
(1)
vietnam vets
(2)
visual cueing system
(1)
vitamin D
(1)
vitamins
(1)
vocal cords
(1)
vocal exercises
(1)
voice exercise
(2)
voice physiology
(1)
voice therapy
(1)
voltage-gated calcium channel
(1)
water therapy
(2)
weak side
(1)
well water
(2)
wheel chair
(1)
winter tips
(1)
winter weather and PD
(1)
withdrawal symptoms
(1)
women with PD
(2)
worry stone
(1)
xerostomia
(1)
yawning
(1)
zinc ascorbate
(1)
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Remember that each person's body is different and will react differently to various herbal, vitamin and mineral supplements. T herefore, any supplementation must be administered on an individual basis.
Use the information found on this web site as precisely that: Information. You and your doctor must make any final decisions. This information is not meant to replace any doctor and patient consultation. This information should in no way replace your personal physician's advice.
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