ACCEPTING PARKINSON'S

In the beginning when I got the diagnosis that it was Parkinson’s I didn’t feel anything.
Those were just sounds that made words. They didn’t even echo in the examination room.

Then after a moment, my doctor put his arm around me and with that gesture, I realized that my life had just changed forever.

I was proactive in my treatment throughout. I started reading everything I could find about PD. I joined online communities like BrainTalk and Ask the Doctor. I became excited about every drug development that was announced. I was almost obsessive about searching for PD information, although that might have been exaggerated by the Mirapex I was taking. But despite all this, somewhere in my head a little voice was telling me, “your life is over.”

That was what I really believed. And of course there was that other voice asking, “why me?” Most of the time in the last four years since the diagnoses was official, I’ve felt depressed and angry and braindead about my situation, even though I kept on reading and posting and looking for new breakthroughs.

When the news about Isradipine came out a year ago I broke down in tears of joy thinking I was saved. I've realized recently that I was putting my life on emotional hold, waiting to not be dying.
I had stopped exercising regularly, my wife took a better job but out of state, I got fired and I now realize these things happened not because I have PD but because I stopped living my life in my doctor’s office 4 years ago.

Now I’ve got a goal to learn how to be alive again. This blog is one of my first steps. Here I will discuss ways of living with PD, new alternative treatments and I’ll report how I’m doing and what’s going on in my world and the world of PD.

I hope some readers will have suggestions for me also and maybe we can debate and laugh like there’s no tomorrow.

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BREATHING TECHNIQUES FOR PARKINSON’S
July 3, 2008 at 8:36 pm · Filed under Alternative Treatments ·Tagged Alternative Therapy, Alternative Treatments