tag:blogger.com,1999:blog-8576518534043843234.post6730792085591464628..comments2023-10-04T11:30:15.484-04:00Comments on Parkinson's Focus Today: Will Creatine Slow Parkinson's Disease Progression?Magshttp://www.blogger.com/profile/17436149078101579405noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8576518534043843234.post-14706928313512603152012-10-29T21:07:27.195-04:002012-10-29T21:07:27.195-04:00While it would be nice to know the trial early fin...While it would be nice to know the trial early findings/results, there is a danger to that just as early polling results can skew the voting results of those who have not yet voted. While I feel the same way as anonymous, I am not sure that I am of the same opinion. This research is costly even with a basic product in trials...and it is probably considered intellectual property.<br /><br />That said, one post I was preparing before Google ceased to support Windows XP (my favorite fun OS) was/is about Steve's use of Pharmaceutical grade micronized Creatine Monohydrate which is available if you know where to look (google it or write to me). We saw an exciting partial return of balance in Steve's walk due to increased arm swing and shoulder engagement. <br /><br />If taking this supplement, dissolve well in warm water or juice (NOT OJ) or even broth preferably in the morning. <br /><br />One issue is dosage and that is where the Huntington's disease trial folks were very helpful in publishing their doses which could differ from the PD trials - I don't know since they aren't talking.<br /><br />Steve began at 5mg and progressed to 10mg and then to 20mg. I know the HD trials used up to 40mg but they are in a controlled situation and closely monitored including kidney and liver function testing I would imagine.<br /><br />One reason for the need to compare notes - as it were - is because that is the way we can be more proactive in our own treatment or the treatments of our loved ones.Magshttps://www.blogger.com/profile/17436149078101579405noreply@blogger.comtag:blogger.com,1999:blog-8576518534043843234.post-6705921294225568222012-05-29T09:01:14.038-04:002012-05-29T09:01:14.038-04:00I am quite dissapointed about the way this study i...I am quite dissapointed about the way this study is managed. This study is in year 5 of clinical phase 3, but no intermediate results are shown. Why is this ? By now, there must be some relevant information available. Based on that information patients all over the world should have the right whether they will consume creatine at own risk or not. PD is all about slowing down progression. Maybe you need 8 years of a clinical trial to get FDA approval, but that doesn't mean patients need to wait 8 years too to get preliminary results.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8576518534043843234.post-48659003647187736972009-10-06T07:00:09.236-04:002009-10-06T07:00:09.236-04:00I think This study is an important step. We are pl...I think This study is an important step. We are pleased to have so many sites participating in this study, which may help us move more quickly toward developing a therapy that could change the course of this devastating disease.<br /><a href="http://www.vitabits.de/erganzungen/" rel="nofollow">amino </a>Anonymousnoreply@blogger.com